Support in Herefordshire for Carers of people with Huntington’s Disease

HUNTINGTON’S DISEASE ASSOCIATION for people involved directly or indirectly with Huntington’s disease


Discovering Huntington’s disease in a family is a traumatic experience. You may feel isolated, drained, angry, confused and both physically and emotionally exhausted.

Whether you are a sufferer, at risk or a carer, you may wish to talk things through with others who have personal experience, understand and can relate to your feelings of frustration and worry.

They aim to offer mutual support in a friendly atmosphere, where families, carers and individuals can mix socially to share their thoughts and experiences, or just let off steam.


Huntington’s Disease Support Groups 

They exist to further the aims of the HDA and to provide local contact points for sufferers, carers and those at risk to Huntington’s disease.


Where do they meet?

Staff Training Room, Tesco Superstore, Abbotsmead Road, Belmont, Hereford, HR2 7XS

They meet for a two hour morning session every 2 months. Please contact us here at Herefordshire Carers support and we can put you in touch with the organiser for details of the next session. Call us on 01432 356068 or email


What are the meetings like?

Carers get chance to talk with others who understand the problems that come with HD. Some carers have had more experience of the disease and can explain how they cope with problems that arise as the disease progresses. Their Specialist HD Adviser attends some sessions and gives advice and up to date information.


If you are a Carer of someone diagnosed with Huntington’s Disease, information, advice and support is also available from Herefordshire Carers Support.

You can contact us on 01432 356068 or email  to register for free and find out what we can do to support you in your caring role.

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