We are a group of Parent Carers who campaign for changes that will improve the lives of families living in Herefordshire who have a disabled child.
We want every Parent Carer to feel supported in their caring role and get the help they need, when they need it. We promote a greater understanding of what it means to be a Parent Carer by working with organisations such as:
- Healthwatch Herefordshire
- Herefordshire Clinical Commissioning Group
- Herefordshire Council
- Wye Valley NHS Trust
- 2gether NHS Foundation Trust
Parent Carer Voice captures the collective learning of local Parent Carers and give their views a voice. We expect the professionals to come to meetings to discuss services rather than send one Parent Carer off to sit in on a ‘steering group’, because together our voice is louder. If you are a Parent Carer and you would like to join The Voice or come to a meeting you would be very welcome.
|10 May 17: Notes | Agenda||11 Jan 17: Notes | Agenda
9 Nov 16: Notes| Agenda
|12 Oct 16: Notes | Agenda
14 Sept 16: Notes | Agenda
|Adult Autism Care Pathway DRAFT V1||Carers Leads in GP Surgeries (at Sept ’16)||Contact adult social care Advice and referral team (Sept ’16)|
|Autism in Children and Young People Pathway V3||SEN Co-ordinators (Provided by Herefordshire Council Sept ’16)|
|Ofsted letter of findings (Sept ’16)||Herefordshire Council response to Ofsted findings|
Parent Carer Voice was part of a successful national campaign to improve the rights of Parent Carers to an assessment of their own needs, writing to members of the House of Lords including HCS Patron Baroness Pitkeathley. The Voice is a member of the National Network of Parent Carer Forums, which is supported by Contact a Family.Herefordshire Carers Support arranges training, provides administration support, takes notes, arranges venues & refreshments. Parent Carers can also claim travel and other expenses when attending these events.
In previous years Parent Carer Voice has campaigned for better information for families about the support that is available; more respite provision, also known as ‘short-breaks’; more open access activities for children and young people with a special educational needs; better understanding and recognition of what it means to be a Parent Carer.
Locally Parent Carer Voice is working closely on preparations for the Children and Families Act (2014) which came into effect in September 2014. The new law expects Local Authorities and Health Services to work with Parent Carers to design and improve services. Parent Carer Voice has organised several consultation and information events. Click here to link to report of the event. Further events are planned, email firstname.lastname@example.org to find out more.
Below are links to our latest documents. If you would like hard copies of the minutes please contact us.
- Information Pack for Visitors to Parent Carer Voice 2015
- The Way We Work – updated September 2016
- Work plan for Parent Carer Support and Participation
- Expense Claim Form
- Participation Feedback and Remuneration Claim Form
Click to access:
- Herefordshire’s Local Offer
- Herefordshire Council’s ‘Children with disabilities and special needs’ page
- Herefordshire children with disabilities transformation programme 2015-18
- Independent Support Service in Herefordshire
- Children and Families Act 2014
- Education, Health and Care Plan
- NNPCF Position Statment – EU Referendum